My Nonprofit Reviews

Global Genes was instrumental in moving helping my family after our young daughter was diagnosed with a rare disease. Kendall, Nicole, Amy and the whole team not only supported us during our most difficult of times - but they encouraged us to start a foundation, connect families and grow the prevalence of our disease. When our daughter was diagnosed, we knew of just 20 patients world-wide. Through advocacy and science, we were able to start a foundation, fund research and build a community of over 100 patient families. Global Genes has made an impact on our rare, genetic disease and the lives of so many kids with rare diseases. The Global Genes team is a member of our family, we love them and are forever grateful for picking us up, motivating progress and always being there for every member of our community. To describe these advocates as "great" is an understatement. The community created has quite literally changed the world and is saving lives every single day.