My Nonprofit Reviews

I can say with 100% conviction that I was lost before finding the MdDS Foundation's website and learning more about this rare disorder. I had spent over a year going from doctor to doctor and misdiagnosis to misdiagnosis. The foundation is very unique in that everyone involved suffers from the disorder, yet takes the time to support each other, promote awareness and to raise funds for ongoing medical research. The organization's support groups are a great place for people to commiserate and share their stories. The MdDS Foundation is a small grassroots foundation, but they have raised over $1,000,000 in the past 3 years. I am certain that the foundation and the researchers they support are the best chance that we have for finding a cure for this rare and extremely debilitating disorder.