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Suzi Beall S.

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1 reviews

Review for 22Q Texas, Dallas, TX, USA

Rating: 5 stars  

When your child receives a the diagnosis of a life-long, complex genetic disorder you've never heard of , it's impossible to not be overwhelmed. When your pediatrician has never heard of that disorder either, it's more than a little frightening and frustrating. You feel lost. When you find an online support group made up of families who have the same diagnosis and understand everything you are feeling, you realize you are not alone. When you have the opportunity to meet these families in person, talk, hug and play together, you know you have a new family! That is what 22Q Texas is. Not just a community. A FAMILY. Families living with 22Q who lean on each other, cheer for each other & love on each other

Role:  Board Member