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steppyd

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1 reviews

Review for cureCADASIL, Plainsboro, NJ, USA

Rating: 5 stars  

After being diagnosed in August of 2015 with Cadasil, I was frankly worried about where my life would be going and what type of condition I would be going there in. My wife started reaching out and studying anything should could find on the subject of CADASIL and it brought us to the cureCADASIl site. It took me a little longer to reach out but I was enlightened by the communication, the spreading of awareness and the advocacy the group is fighting so hard for. Since then I have joined as a volunteer and I have found a true blessing in helping fight to cureCADASIL. Without this group there would be a lot of people running around without any information for this terrible defect. With the help of cureCADASIL there is a glimmer of hope that someday may fully blossom to a cure!

Role:  Volunteer