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ggnoirs

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1 reviews

Review for National Encephalitis Foundation Inc, San Jose, CA, USA

Rating: 1 stars  

NEF was run by Debra Caires. There was information regarding the disease and an email support group. This hasn't been in existence for years.

I've personally experienced the results of this organization in...

At first I did meet others with encephalitis but Debra dropped the ball and left everyone hanging. We had a fundraising dinner in California but nobody else seems to know where those funds went.

If I had to make changes to this organization, I would...

not allow it to be called or own the name, "National Encephalitis Foundation"

Ways to make it better...

Debra had officially turned the website over to someone who could run it.

One thing I'd also say is that...

I've said enough.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?

1997

Role:  General Member of the Public & Was formerly a member of this group.