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1 reviews

Review for The Lam Foundation, Cincinnati, OH, USA

Rating: 5 stars  

I was diagnosed with LAM following a 10 day hospital stay. Other than being short of breath, I had no reason to suspect I had anything wrong with me. The diagnosis of LAM shattered my world. Overnight, I was thrust into a world of full time oxygen use, a rare illness no one had heard of, and my doctors (former, now) were of little help. I googled LAM and came across the LAM Foundation. What a diffenence a search can make! Within a week, I was sent a packet in the mail, telling me many critical things that were known about LAM. More importantly, the Foundation sponsers a list serv grou- where women with LAM can communicate- for help, support, and information. This changed my outlook dramatically, as I was able to learn, and cope, and adjust.

I've personally experienced the results of this organization in...

I was part of the MILES trial that the Foundation funded. It was because of them I developed a relationship with the Cleveland Clinic, where I hope to get listed for a double lung transplant- the only treatment open to LAM women.

What I've enjoyed the most about my experience with this nonprofit is...

The information avialable- up to date! The caring way each and every one of us are treated. The fact I was allowed to participate and make a difference!

The kinds of staff and volunteers that I met were...

They are warm- and approachable, and care about every single LAM patient they come in contact with.

If this organization had 10 million bucks, it could...


How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Client Served & I received a life line.