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Gary R.1

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2 reviews

Review for Cholangiocarcinoma Foundation, Herriman, UT, USA

Rating: 5 stars  

When I was diagnosed with cholangiocarcinoma in 2008, there was very little information to help the newly diagnosed. Over the past several years, this wonderful foundation and group of caring individuals has significantly changed the situation. The amount of info regarding all areas of symptoms, expectations, possible treatments and trials has grown immensely. The conferences have allowed us to meet other patients, doctors, researchers and volunteers to let us know we, as patients, are not alone.
I communicate with many cholangio patients, including newly diagnosed, and always recommend the CCF site resources.
I will be eternally grateful for their supports and the work they do.

Role:  General Member of the Public
 

Review for Cholangiocarcinoma Foundation, Herriman, UT, USA

Rating: 5 stars  

When I was diagnosed in 2008 with cholangiocarcinoma (CCA), It was an unknown illness. There was very little information available and it was very dated. My wife Pat and I felt alone, with little hope since we had never heard of anyone else having such a rare condition.
My oncologist, for whom I have the utmost respect, told me about this organization and it has been a blessing ever since. I connected to the web site and was surprised at the abundance of information available along with support, resources and contacts.
We have attended the last two conferences in Salt Lake City and I had the honor to present my story at the 2017 conference. Having met numerous others who are dealing with this cancer and fighting the battle, we no longer feel alone. We have gained friends with whom we maintain contact and I have even been contacted be several fellow patients to help them understand how we have dealt with biliary cancer.
This is an amazing organization, run by fantastic and caring people. I have recommended CCF to many patients and always received positive feedback from them. I will be eternally grateful for the help I've received from the Cholangiocarcinoma Foundation.

Role:  Client Served