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Review for Cholangiocarcinoma Foundation, Herriman, UT, USA

Rating: 5 stars  

I lost my brother, Clint Wheeler to Cholangiocarcinoma in November of 2014. He was 48 years old and left behind a wife and 2 children, both under the age of 14. When diagnosed in March of 2014, I searched frantically for resources as well as facilities to battle this rare underfunded, and often misdiagnosed cancer. The Foundation provided our family with invaluable information on the best facilities, doctors and trials available for patients with this insidious and vicious disease. Stacie Lindsey, President of the Foundation, also shares my family's story with the loss of her brother in 2005. She is a vast well of knowledge, compassion and passion and works tirelessly with her team to support other patients and their families in the hopes to eventually raise enough funds to find a cure for a disease that only affects 2% of Americans and gets very little attention and funding. I am intensely grateful to the foundation for continuing to provide a safe haven for patients and their families afflicted with this frightening and misunderstood disease. You are a beacon of invaluable information, but also and more importantly a place of understanding and compassion.
With all of my thanks and my heart,
Rainey Foster

Role:  Volunteer