My Nonprofit Reviews

girlie.deneros - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

girlie.deneros

74 profile views
1 reviews

Review for Coping With Laryngomalacia, Inc, Belford, NJ, USA

Rating: 3 stars  

Hi I am Girlie Deneros from Philippines, upon checking in the internet about Laryngomalacia, I encountered your website, and I would like to ask if you could also help my 1 year old son, who was born with multiple congenital anomalies and diagnosed with Laryngomalacia. Baby Ramilan also has both micropthamia( small eyes) which means from the time he was born he is totally blind. from 4 months until now, his feeding is thru NGT (tube feeding). the doctor already advised us to shift to PEG feeding, but due to his recurring Pneumonia his operation is always postponed. I hope thru this website my son could be able to feed thru his mouth, if it is possible to undergo operation to treat his laryngomalacia. I noticed also, that during his sleeping, he sweat a lot, suspect that he might also has sleep apnea, but I was not able to discuss that to his pedia. I hope you could help me and my son. Thank you so much and more power!

Role:  General Member of the Public