My Nonprofit Reviews

I was first diagnosed with VHL in 1996 and, being only 22 at the time, came as a huge hit to my world. After searching through research reports, combing the library and talking with my doctors to learn more, I came across the VHL Family Alliance. It was a breath of fresh air - the resources for patients, families and the medical community, as well as supporters at large are phenomenal! The active pursuit of funding and promoting research to find a cure and increase the quality of life of patients is extraordinary; and the network of families and medical professionals is highly valuable. All of these factors, combined with a desire to give back to an organization that has given me so much drove me to get involved. I have always been proud to be a part of such a great organization and will long continue to work to make life better for patients and families by supporting, promoting and being involved in the VHL Family Alliance.

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