My Nonprofit Reviews

The CdLS Foundation has been an invaluable resource to my family as well as the hundreds of other families who have been impacted by the diagnosis of CdLS. For many people, including myself, the diagnosis left us heartbroken and feeling lost. The Foundation was there to guide us and help us navigate the confusing world of dealing with doctors, insurances, the red tape of early intervention, etc. The team at the Foundation is a group of people who are compassionate, are generous with their time, extremely supportive and do so much to raise awareness and help families cope with the unexpected that comes with having a child/family member with CdLS. In addition to raising awareness and educating people about CdLS, the Foundation is always doing things to bring families together. Between fund raising events, family gatherings and social media, there are so many ways the Foundation works to be there for their extended CdLS families. We couldn't imagine life without the Foundation and will be eternally grateful for the love and support they have shown us.