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2 reviews

Review for PKD Foundation, Kansas City, MO, USA

Rating: 5 stars  

The PKD Foundation is the only organization in the world devoted solely to helping those affected by polycystic kidney disease (PKD). Their dedicated and efficient staff are incredibly committed to their mission and have effectively helped to educate and empower PKD patients worldwide. Through my involvement with the PKD Foundation, I gained the knowledge and support to help me better live my life with PKD with hope for the future. I can also honestly say that our involvement with this organization and the contacts and information gained saved my father's life. The PKD Foundation is our best chance for a cure, and already they have hoped get us very close to a treatment. Education, Advocacy, Support, and Hope. This is what the PKD Foundation has done for my family.

Would you volunteer for this group again?


For the time you spent, how much of an impact did you feel your work or activity had?


Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?


When was your last experience with this nonprofit?


Role:  Volunteer

Review for PKD Foundation, Kansas City, MO, USA

Rating: 5 stars  

The PKD Foundation has been a resource for information for my family since the late 80s, when my father's kidneys started to fail due to PKD. Since that time I've turned to the PKD Foundatin for information often, through my own diagnosis, pregnancies and kidney infections. With a disease that can leave you feeling helpless, I've found empowerment through information and thanks to info I learned from the Foundation I'm now in a clinical trial and hopeful that I might be able to put off kidney failure. I volunteered to coordinate our local Chapter in 2004 and have been impressed by all the staff at the PKD Foundation, how dedicated everyone is to the cause, and how frugal they are with expenses to ensure that every penny possible goes to programs for patients and RESEARCH! I am thankful EVERY day for the PKD Foundation and the hope it gives to families like mine.

I've personally experienced the results of this organization in...

When I was diagnosed with PKD, there were no no promising treatments whatsoever. 20 years later the PKD genes have been identified and there are over 20 clinical trials in the works, and the PKD Foundation had a hand in all of this progress!

What I've enjoyed the most about my experience with this nonprofit is...

the opportunity to meet so many wonderful people who are devoted to finding a cure for PKD, and the sense of empowerment that being involved has given me.

The kinds of staff and volunteers that I met were...

all extremely devoted to the cause!

If this organization had 10 million bucks, it could...

fund spread awareness even more, fund more research, and get us even closer to a cure for PKD!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Volunteer & I volunteers as the coordinator of our local PKD Foundation chapter in the Hudson Valley area of NY. I also started up the Hudson Valley Walk for PKD 6 years ago.