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Review for Williams Syndrome Association, Troy, MI, USA

Rating: 5 stars  

The WSA has been such an important part of our lives since my granddaughter, was diagnosed with Williams Syndrome. I cannot even remember all of the ways they have been there to support us emotionally and physically on our journey. I had written to them right after we received the diagnosis, and we received such a lovely letter from the president of the Association, Terry Monkaba, helping us to be able to process what we had just been told. Whenever we ran into any health issues, that had to do with Williams Syndrome, I would call them, and they always could answer my questions in an intelligent and caring way. When my granddaughter was facing the possibility of having to undergo a major health procedure, they put us in touch with a leading geneticist, who has been invaluable to us, helping us to be able to handle so many of the different issues that have come up through the last years. The conventions that are held every 2 years, which are sponsored by the Williams Syndrome Association, are of immense help to us as caregivers of children with Williams Syndrome, besides giving us an opportunity to meet and talk with other parents and caregivers of someone with Williams syndrome. They offer scholarships to other Williams Syndrome individuals to go to these conventions, or to be able to attend a music camp with Ws peers. They put funds toward research which is so important to us, as there is still so much not known about WS. They have been there every step of the way to every individual that reaches out to them or that they are made aware of that is affected by Williams Syndrome. This is why we feel it is so crucial to support this amazing group, in any way we can.

Role:  Donor