My Nonprofit Reviews

Chromosome Disorder Outreach provides a space for families to know they are not alone in supporting loved ones affected by rare chromosome and gene disorders. I'm continually amazed by this community.

Chromosome Disorder Outreach was started by parents who wanted to not only support their family but other families also the challenges of living with rare chromosome disorders. But the great thing is that they also support families by sharing the successes. You can hear in member spotlight stories, Facebook posts, and more how much love and compassion there is in the CDO community. Their yearly calendar showcases artwork by members... parents so proud of the fingerpainting, digital artwork, and other creations of wonderful children. CDO really does remind others they are not alone!

I found CDO when my now 16 yo son was just 2 yo. We've been with them ever since... listening and giving back as a volunteer. I would not have found the resources and connections I needed, when we first found out about his genetic deletion, if I had not Googled and found this community.

CDO has provided and continues to provide support to families when they need it the most. Thank you for all you do!

CDO was there for me when I needed it 12 years ago (told by the doctors not to google my son's deletion but I did anyway and it led me right to this wonderful source of information and support).

CDO was been a great resource to me when my son was first diagnosed and continues to be a great community that I try to support where I can!

When we received my son's diagnosis, the doctor said whatever you do, don't start googling his deletion. But of course I did and I'm so glad... I found CDO, people like me, people like my son, and a wonderful organization to volunteer for!