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JennyJoe

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1 reviews

Review for Williams Syndrome Association, Troy, MI, USA

Rating: 5 stars  

The WSA has been our support and source of knowledge since BEFORE our daughter was diagnosed with WS. I determined that our younger daughter had WS well before her pediatrician would even consider ordering the bloodwork for her, and it's all because of the comprehensive information on this site. I learned what a blessing these kids are, and I was excited to know that our Ellie was part of this community. And that was before the doctor's office told us she had WS!

Throughout the 7 years since Ellie's diagnosis, I STILL reference the WSA's site, not only for myself, but especially for her educators through the years. The information and documented research is incomparable, and her teachers have always welcomed it.

The WSA staff feels like family to us, treating us with their time and kindness. They always help with fundraising awareness and goals; they never hesitate to provide me with handouts and other resources.

The community that the WSA has created is amazing. We have SO many WS friends (well, family, really) across the USA and the world. The summer camps get rave reviews (Ellie has yet to attend one), and the convention that we attended last summer was so much fun - and educational!

I don't know what I would do without the WSA helping me advocate for our daughter!

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