My Nonprofit Reviews

As a parent of a child (now young adult) with WS, I continually give thanks for the work of the WSA. Our son was diagnosed before information was available on the web -- I remember how important the stack of articles I received in the mail from the WSA were to us. Hardly anyone we knew (including our doctors) knew much about this condition.

We've been to nearly every national WS convention since our son was diagnosed. These have provided us with invaluable information for raising and educating our child. As time goes by, these gatherings are more and more important to our son with WS who enjoys the community and camaraderie -- and being around people who understand him.

Along the way, we've learned much through the WS newsletters and the support network. And we appreciate being able to contact the national office for help when we come across an issue with our son that has us all flummoxed. The WSA has made a huge difference in our life and the lives of all those with WS, and those who love them.