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Review for Williams Syndrome Association, Troy, MI, USA

Rating: 5 stars  

When our son was recently diagnosed with Williams Syndrome, a fairly rare genetic disorder, we didn't know where to to turn. But there was one source that we trusted while avoiding internet forums and less trustworthy websites: the Williams Syndrome Association. Their multimedia work with families was very comforting in the days after our son's diagnosis and the medical information helped us understand things between appointments. Finally, we attended our first Williams Syndrome Walk this past May, organized by the WSA with assistance from parents and volunteers. It was the first time we were able to meet such a large group of individuals with WS and their families. It meant the world to us.

Role:  Client Served