My Nonprofit Reviews
Review for FRAXA Research Foundation, Newburyport, MA, USA
"Father of 17 years old kid affected by FXS.
Finding a way to cure a rare and devastating disease : Fragile X Syndrome
It's the uncommon challenge of FRAXA.
Only few years ago, this syndrome wasn't known nor studied.
Do remember that all started with the discovery of a gene in 1991, than the replication of the disease, mouse model in 1994, than new knowledges about FXS and with clinical trials to modify the disease.
Since more than 2 decades, FRAXA inspires all scientists to develop new works and to conduct new studies about FXS. Every year, FRAXA is on track with only regard on its own target, encouraging worldwide all scientists to work more harder, and more smarter, to find the clues so that the adverse effects of the disease can be countered.
Until today no central nervous illness has been cured. By Gods grace and FRAXA, FXS might be one of the first ones.
FRAXA demonstrates that a dream, a cure, might in a near future become true.
FRAXA is an excellent example of the American dream: utopia might become reality.
Those are among many other valuable issues why FRAXA is so special.