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stinson

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1 reviews

Review for Chromosome Disorder Outreach, Inc., Boca Raton, FL, USA

Rating: 5 stars  

My daughter has an extremely rare genetic disorder and through this nonprofit we managed to connect with about 10 children with the same rare chromosome disorder. We have been able to compare developmental progress, medical findings, solutions that have worked, and also compassion, support, useful tips and friendships. It's an amazing site that has changed our lives, broadened our knowledge, and brought parents together in ways no other organization has been able to.

Role:  Volunteer