My Nonprofit Reviews

01Karen
Review for Encephalitis Global, White Plains, NY, USA
I came ill in 2009 with viral HSV Meningo Encephalitis. After 3 weeks in the hospital and then home with a pic line and home health nurse for another month I was completely lost, shattered and broken trying to make sense of what had happened to me. I felt like I was trying to pick up pieces of my brain and make them fit together and be whole again. Even though I was treated initially very quickly with antiviral IV as well as anti seizure drugs and IV steroids to reduce the swelling in my brain, I had no one really telling me or my family what exactly might happen to me long term. Well, I can tell you. I went into a deep depression. I felt completely separated from my own brain. I then found Inspire and Encephalitis Global. I'm not sure what my long term outcome would have been without all of the kind uplifting support that I received from people around the world who understood everything I had been going through for 2 years on my own. It's like I found a whole new family of supporters. I have made some great friends and I know that without the support from them I would not have been able to keep pushing forward and reaching out of my own comfort zone dealing with an acquired brain injury. We as a group are all honest about our struggles. It is so comforting to know that we truly are not alone fighting everyday to find ways to deal with the residuals that accompany this horrible condition.