My Nonprofit Reviews

Juvenile Dermatomyositis (JM) is extremely rare (2 children in a million) and can attack any system of the body. Since there is not a cure for JM; funding is desperately needed to continue with research and increase awareness of JM with the general public and the medical community. We believe this is our only possibility of finding a cure. I am the owner of HD Photography and we are making every effort to go big with our fund raising events. This is near and dear to our hearts as my nephew Mason was diagnosed with this debilitating disease at 18 months and he is currently 6 years. This disease has robbed him and other children of their childhood. It brings muscle weakness and much much pain. It causes calcification under the skin that eventually bores itself out cause big sores that are extremely painful and open for infections. There is not a lot known about the disease as it is so rare and we need help raising money for the foundation and bringing attention to the disease. Currently Mason is not able to walk or stand and only has little use of one hand. Because of his immobility it makes bathing difficult as his parents have to lift him. Their insurance denied bath equipment that would make it easier to get him in and out of the tub. He lost his eyes sight earlier this year because of this disease but was able to regain it after a lens replacement surgery on both eyes. Mason's parents are up many hours of the night as Mason wakes up and needs to be rolled due to the fact he cannot do it himself. Mason has had many many surgeries for various failing functions due to the disease but he is a strong fighter. Although their family faces many challenges daily they all maintain their humorous, kind and strong personalities for which we can all be thankful for. HD photography is doing what we can to bring attention to this wonderful foundation. If we all come together and help support this foundation we can all hope that one day there will be a cure. Please help support us in our fight against JM.

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