My Nonprofit Reviews

My only child, Aaron, was diagnosed with ALS in November 2011, at the age of only 20 years old. A single mother, I felt alone, scared, and angry, and I was desperate to find help. In February 2012, I took Aaron from Kentucky to see ALS neurologist, Dr. Nicholas Maragakis at Johns Hopkins Hospital in Baltimore, Maryland, in which he referred us to ALS Worldwide. From my initial phone call to ALS Worldwide, and every day since, ALS Worldwide has been faithful in helping my precious Aaron battle ALS. They have provided to us, without charge, trial medications, therapies, and imperative resources that we would never have had access to, or knowledge of, without ALS Worldwide's support, passion, and relentless drive to find a cure for ALS. The founders, Steve and Barb Byer, have truly been a blessing to us, and we absolutely cannot imagine what we would do without their organization.
-Tammy Mattox, Kentucky