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Review for Lmsarcoma Direct Research Foundation, Tulsa, OK, USA

Rating: 5 stars  

I have been involved with LMSdr as a patient and community volunteer. The support and information received through LMSdr has been invaluable. Immediate support for newly diagnosed people who are scared by reading the dismal life expectations of this disease. They find us and can reap the collective knowledge of patients all over the world. Advocating for yourself is hard period and then you add a rare diagnosis like LMS and even the strongest person can crumble. LMSdr is there 24/7 with our Facebook group to be a support and the research focus of the charity helps us connect directly to researchers interested in LMS. I am still alive at 7 years and credit LMSdr for helping with that.

Role:  Client Served