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3 reviews

Review for FamilieSCN2A Foundation, East Longmeadow, MA, USA

Rating: 5 stars  

I connected with this organization several years ago when a dear friends son had SCN2A and she introduced me to other families since our daughter also had a rare genetic disorder. This is an amazing foundation that goes above and beyond to fundraise to find a cure, research, engage the community, provide grants and resources, while spreading awareness and providing support! I was able to volunteer at their walk and have donated to this special group. They are a wonderful nonprofit!!

Role:  Volunteer
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

This is an outstanding organization that is giving our community so much hope as we can see a cure on the horizon. They are making remarkable strides in research! We are forever grateful for the support they have given our TSC family and community. The local and world conferences are amazing, the annual walks are inspiring, the opportunities for federal and local advocacy are available annually and continue to be successful, and the fundraising events are fantastic!! Truly a wonderful organization!!

Role:  Volunteer
 

Review for NATIONAL TUBEROUS SCLEROSIS, Silver Spring, MD, USA

Rating: 5 stars  

We were connected with the TS Alliance shortly after our daughter was diagnosed with TSC1 in 2014. This is amazing organization and we were so grateful to get connected with them! They have helped us connect with other TSC families nationwide & top TSC clinics. We are advocates & volunteers with this organization. They listen to our feedback and always provide assistance when we reach out to them. Each year we travel to Washington, DC to lobby for federal funding with their guidance & help for the TSCRP. We feel like we are a part of a family & can make a difference to find a cure. Thank you TS Alliance for everything you do for our daughter, our family and our TS community!!

Role:  Volunteer