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Review for The Corneal Dystrophy Foundation, San Jose, CA, USA

Rating: 5 stars  

I was diagnosed with Fuchs Corneal Dystrophy in 2002 but was told I was in the early stages and not to be concerned. But by 2004 my vision was getting worse, I had given up driving at night bevause of glare issues and halos around car lights but several Opthamologists thought this was caused by cataracts that weren't ripe enough to be removed. I continued to suffer with declining vision and my work as a nurse began to be effected, In 2006 and did a web search on Fuchs Corneal Dystrophy and found Fuchsfriends--I wrote to them, became a member and found a group of people with extensive knowledge of this disease. They offered suggestions r/t sunglasses to wear to diminish glare issues, they recommended Corneal surgeons I could contact to get a second opinion. Because of this wonderful organization I found a Corneal surgeon in Hershey Pa (6 hours from my home in Erie Pa)After meeting this surgeon, Dr Rosenwasser, I knew my eyes were in good hands, he did my cataract surgeries in 2006 and I had my first DSAEK in July, 2008 and am looking forward to having my Left DSAEK on June 8, 2010 This group has been supportive, they answer all questions, offer encouragement and give you knowledge through brochures, DVD's of past symposiums and personal stories on their website that depicts several members journies with this fickle disease. It is because of them I am on the road to being Fuch's free

I've personally experienced the results of this organization in...

They offered me hope, support and knowledge that helped me make an informed decision of how to proceed and not let this disease take away my vision--they gave me back my vision/my life

What I've enjoyed the most about my experience with this nonprofit is...

Friendships have been formed, their constant support has been instrumental to my experience dealing with this disease and empowered me to be aggressive r/t my treatment options

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  Client Served & I receved knowledge about this disease and options that were available to me.