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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 4 stars  

I am just now signing up for any organizations that can provide information, or help with ET. I have had the tremors all my life now that I am getting older and have had some very stressful events occur my tremors are effecting my personal life and my job drastically. I am seeing a Neurologist and have tried all the meds, but for some reason or another I have had severe side effects. I do take the Xanax and have for many years I am aware of the long term side effects, but it is the ONLY thing that allows me to function at a minimal.

My doctor told me that the FDA approved an ultrasound procedure and the closest medical center preforming it is Stanford Medical Center. I have emailed them several weeks ago and I am very interested in a less invasive procedure than Deep Brain Stimulation. I have not heard back; however, I am so looking forward to this treatment it sounds promising.

I am also dealing with lower back problems and surgery has been suggested by many doctors. I would like to take of my health issues and have the results be successful, so I can function in my personal life and at work. My job is getting increasingly challenging with the back pain and my tremor's I do not know how much longer I can continue to work. It has become very difficult. :(

If anyone has any other information, or how I can get a response from Stanford please let me know. I live by myself and it is challenging as you all know to take care of everyday life situations. I am trying to stay positive while I wait to hear back from Stanford.

Any suggestions please share it would be much appreciated.

Role:  Volunteer