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Review for Usher Syndrome Coalition, Maynard, MA, USA

Rating: 5 stars  

I was diagnosed with Usher syndrome when I was 8 years old. Because few people have Usher syndrome it was difficult for me to find information about the latest research. It was also hard for me to connect with others who have Usher Syndrome. The Usher Syndrome Coalition has changed that for me. Of all the wonderful resources the Usher Syndrome Coalition provides the conferences have made the biggest impact on my life. At the conferences I am able to learn about the latest research while connecting with others who have Usher syndrome. I am so fortunate that the Usher Syndrome Coalition has given theses opportunities, I am much more comfortable with diagnosis. There's hope! And I'm not alone!

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