My Nonprofit Reviews

DES Action has been invaluable as a resource and support for me as a DES exposed Daughter. It is the only organization where I can read about research studies, that have been vetted and interpreted for the lay person, so you don't have to try to understand complicated medical terminology and statistics. Research often translates into medical care. DES Action has information for doctors who care for the DES exposed. Without the right kind of detailed care and information about the conditions and risks that DES exposed people may suffer from or develop, they can't get the correct tests, or worse their conditions may be misdiagnosed or dismissed. DES Action is the best, most informative, and comprehensive organization who advocate, protect, support and teach about DES exposure. I depend upon them for the most up to date information about studies and my care.

DES Action is the only non-profit that "identifies, educates, advocates for and empowers the DES exposed population. Their benefits are many:
Searchable Doctor Listings — DES aware doctors in your area.
Monthly eMail Alert — News and updates every month in your eMail box.
Quarterly VOICE Newsletter — The VOICE documents the history, the science, the new research, and the personal stories of DES.
Attorney List — A list of knowledgeable attorneys DES Action members have shared.
Exclusive Content — Expanding collection of articles and videos accessible only to current DES Action members behind our members tab of the website.
*New! Stupid Cancer App — Offers online opportunity to seek support or provide mentorship to other DES exposed, with or without a cancer diagnosis. Allows you to choose who you communicate with. Currently available for IPhone, and Android app.
*New! Library of Facebook Live Events — During our 40th anniversary year, and going forward, go to our DES Facebook page to “attend” talks by authors, researchers, and advocates of interest to the DES community. Ask questions, get answers live! Can’t attend…no problem, view the videos available to members on DES Action website after the event!
DES Action USA on Facebook* —“Like” DES Action USA on Facebook and follow us on Twitter to stay up to date on medical and environmental health news that affects you, your loved ones and the planet.
Online Support Group for DES Daughters — A safe private community of DES Daughters where you can compare notes, share doctors’ advice, and resources, and gain knowledge on issues that affect DES Daughters during different phases of life via our email listserv.
Toll free number — (800) 337-9288

DES exposure is a lifetime watch, and research is ongoing on how it impacts DES exposed, including the 3rd generation(grandchildren of the original mothers who were prescribed DES). You won't find information in the news, so this organization is the watchdog, and has contacts with the researchers, and can advocate for you, and help you get what you need from your doctors. I can't say enough about them. It is because of them and their work that DES exposure and the millions who were medically and emotionally impacted are still getting the attention they need!

DES Action is the only non-profit that "identifies, educates, advocates for and empowers the DES exposed population. Their benefits are many:
Searchable Doctor Listings — DES aware doctors in your area.
Monthly eMail Alert — News and updates every month in your eMail box.
Quarterly VOICE Newsletter — The VOICE documents the history, the science, the new research, and the personal stories of DES.
Attorney List — A list of knowledgeable attorneys DES Action members have shared.
Exclusive Content — Expanding collection of articles and videos accessible only to current DES Action members behind our members tab of the website.
*New! Stupid Cancer App — Offers online opportunity to seek support or provide mentorship to other DES exposed, with or without a cancer diagnosis. Allows you to choose who you communicate with. Currently available for IPhone, and Android app.
*New! Library of Facebook Live Events — During our 40th anniversary year, and going forward, go to our DES Facebook page to “attend” talks by authors, researchers, and advocates of interest to the DES community. Ask questions, get answers live! Can’t attend…no problem, view the videos available to members on DES Action website after the event!
DES Action USA on Facebook* —“Like” DES Action USA on Facebook and follow us on Twitter to stay up to date on medical and environmental health news that affects you, your loved ones and the planet.
Online Support Group for DES Daughters — A safe private community of DES Daughters where you can compare notes, share doctors’ advice, and resources, and gain knowledge on issues that affect DES Daughters during different phases of life via our email listserv.
Toll free number — (800) 337-9288

DES exposure is a lifetime watch, and research is ongoing on how it impacts DES exposed. You won't find information in the news, so this organization is the watchdog, and has contacts with the researchers, and can advocate for you, and help you get what you need from your doctors. I can't say enough about them. It is because of them and their work that DES exposure and the millions who were medically and emotionally impacted are still getting the attention they need!

I consistently rely on Medshadow, Inc for information about prescriptions that I am researching for my elderly parents' care and for myself. I am a DES Daughter, exposed to DES in utero. Having been medically negatively impacted by this exposure, which was a "medication" prescribed and taken by my mother while she was pregnant with me, by an Army doctor; I am very skeptical about any medication and its risks vs. its benefits. Medshadow is my "Go to" to get information about medications, environmental toxins, etc. The website is up to date and full of helpful information. It helps me make decisions on whether or not a medication's risks is really worth its presumed benefits. It opens conversation between me and my healthcare providers and those of my parents. Thank you, Medshadow!

As a DES Daughter, who was fortunate in having two live births, resulting in two healthy children after many worries, anxiety and being bedridden during both pregnancies as a result of my DES exposure, in utero, in addition to many other DES related conditions; I continue to worry about my children and their medical futures, and my mother, who is still living with many medical problems. Research must continue into the 3rd generation and also my generation, with still unknown risks and medical conditions. DES Action has been the one organization that I can trust to get vetted information that is based in research. It also has a wealth of resources on the website, and there is a support group listserve for those who wish to participate. DES exposed individuals are everywhere: I met someone in my gym, at my hairdresser, and at a lecture I attended with 25 people in attendance. Of those 25, 2 people came up to me to tell me of their family's DES exposure: mind you, the lecture was not on DES, but on breast cancer. DES exposure is not rare, yet if DES Action USA weren't there for us, the medical community and community at large would let it recede into the background. It is not a dead issue and DES Action keeps it alive! DES Action is also now going to provide counselors via telephone. This is a much needed service as DES exposed individuals are dealing with medical conditions, diseases and emotional trauma. What of the 3rd generation? The future is unknown and we must continue to rely on DES Action USA to be there for us!