My Nonprofit Reviews
mll26
194 profile views
1 reviews
Review for VHL Alliance, Boston, MA, USA
TheVHL Alliance under the auspices of Joyce W. Graff has made such an impact on the lives of people with VHL many lives have been saved and helped to lead a better life. She has worked with the medical community to further research to help find a cure for VHL. She and her wonderful staff are to be commended. My concern is the lack of funding they receive because it is a rare disease.
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I've personally experienced the results of this organization in...
The handbook and the newsletters are of tremendous help in explaining and keeping up to date with VHL. The website is constantly being updated and is very useful for the latest news. Inspire is most personal and insightful.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
Role: Client Served & Try to promote awareness of what VHL Family Alliance.
