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kglenn8

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2 reviews

Review for Cholangiocarcinoma Foundation, Herriman, UT, USA

Rating: 5 stars  

The a Cholangiocarcinoma Foundation means so much to so many people including patients, caregivers, family members, and medical personnel. This devastating disease needs awareness and research and the Cholangiocarcinoma Foundation provides support to those in need. This foundation is one of the only groups that brings together patients, caregivers, researchers, doctors, and pharmaceutical companies to unite for a cure. So many individuals and families would feel so lost and alone if it weren't for this foundation. I can speak to all of these statements because my Dad was a patient. The Cholangiocarcinoma Foundation gave my family hope, gave my father hope, in a time where we felt there was none. I am forever grateful for this organization and the need for it is beyond measurable.

Role:  Volunteer
 

Review for Cholangiocarcinoma Foundation, Herriman, UT, USA

Rating: 5 stars  

The Cholangiocarcinoma Foundation provided information and resources for my family during one of the worst times in our lives. My father, my best buddy, was diagnosed with stage 4 Cholangiocarcinoma in January of 2016 and passed away within months, in May of 2016. With this devastating news came a very poor prognosis but we knew we would fight. The research began and we came across The Cholangiocarcinoma Foundation, which led us to find the top specialty doctors for opinions, information on treatments, personal stories, and support. Cholangiocarcinoma is a devastating, complicated, and tragic disease. This Foundation is a support to families in a time of need when we feel so alone and so helpless. The annual conference hosted by the Foundation brings patients, caregivers, and doctors together to find a cure. The specialist we went to at Mayo Clinic, Dr. Gores recommended we go to the conference. The knowledge we gained about the disease prepared us for the devastating complications associated with this disease that were to come. The relationships formed with others affected by this disease will last a lifetime and we know these wonderful people because this Foundation brought us together to support one another. This disease needs awareness, research, and a cure. The Cholangiocarcinoma Foundation advocates for a cure and I will continue to support it in honor of my Dad. I miss you and love you everyday Daddy.

Role:  Volunteer