My Nonprofit Reviews

The most amazing and proactive advocacy and support group I've ever been involved with in my life. I've got Syringomyelia, Tethered Cord Syndrome, Disc Degenerative Disease and a life time of rare neurological diseases and disorders all related to Syringomyelia. This group truly is the very best in education , support and ways to advocate for those of us with this highly rare disease. What a True Blessing!!!