My Nonprofit Reviews

When my daughter was born and diagnosed at birth with DCM nineteen years ago there was no place to turn for support. Every pediatric cardio support group we tried was always focused on congenital heart issues. And then the Yues created CCF. Suddenly I met parents from all over the world through the listserve, and we discussed symptoms and new drug trials. I felt hopeful. As the organization grew my online friend group also grew. I was able to meet some of those families in person. Having a chronically ill child can be isolating, CCF gave me a safe place filled with amazing people. On top of that they wrote detailed school protocols I shared with my child's school which they used to create policy. This non-profit works tirelessly to raise funds for promising research. If it wasn't for CCF many of the medical interventions for CM that are routinely used today would not even be available. I consider CCF to be as essential to the survival of our daughter as our favorite cardiologist.