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sophiejoanne

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1 reviews

Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA

Rating: 5 stars  

My daughter (my second child) was diagnosed at 9 weeks old with cardiomyopathy and her father and I felt at sea without an anchor or a map. CCF was a port in this storm. A great source of information but also a way of connecting people who although often live miles and miles apart geographically - share experience and understanding of what it is to walk this road with your children and family. Thank you. Not sure what we would have done without you.

Role:  General Member of the Public