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1 reviews

Review for National Uterine Fibroids Foundation, Enid, OK, USA

Rating: 5 stars  

I was shocked when my doctor suggested a hysterectomy. I was just diagnosed with uterine fibroids and came to him about the symptoms they were causing. I didn't even know what fibroids were! This was early 2000 and I was 42 years old with one daughter. I started my research about uterine fibroids and found Carla Dionne's book, "Sex, Lies, and the Truth about Uterine Fibroids, her group and the awesome organization NUFF. I read Carla's struggle with the medical communities ignorance about the inclusive role of a women's uterus beyond child bearing and the roles hormones play in our stability as humans. On the yahoo groups page I read daily of hundreds of womens struggles from around the world on how they were introduced to this condition and ultimately their medical professionals always choose hysterectomy first. Not because it was the best for the woman but because it was the easiest for them to perform. I learned that fibroids are begnin and I could wait to see if I could live with them. Eight years later I realized I had enough of the creeping symptoms; bulk in my abdomen, trouble breathing, GERT, incontinence and tired of being asked when the baby was due. I had stayed on Carla's uterinefibroid site and followed NUFF for those 8 years and was fully informed and capable by now to chose the doctor and the procedure of my choice that was best for me. Without NUFF and I would have been wandering in the wilderness. I chose, at 50 yrs, to have a myomectomy and preserve my uterus. It has been 2 years now and I am living life again! I am fibroid free and feel like a young vivacious woman again in all aspects. If it wasn't for NUFF and Carla's passion for the truth thousands, no-millions of women would be lost, scared, and succumbed to the unneccesary hysterectomy and the whole other host of troubles that come with that. Thank you NUFF for saving my quality of life. Thank you Carla Dionne for your tireless passion.

I've personally experienced the results of this organization in...

providing me with the resources that I could not find from my medical community.

How frequently have you been involved with the organization?

One time

When was your last experience with this nonprofit?


Role:  General Member of the Public & I learned that there was a host of options to treat my fibroids and avoid a hysterectomy.