My Nonprofit Reviews

As a mother to a child with a rare disease & president of Dyskeratosis Congenita Outreach, Inc. my relationship with Global Genes in priceless. The conferences afford opportunity to learn, grow, connect, and find that though we are rare we are not unique in our challenges. It is empowering being connected amongst the rare disease village, knowing we are not alone in this journey. Thank you GG for all you do!

I can say without a doubt, I still have my firstborn because of DCO! They helped me reach physicians that specialize in this disease. It created relationships that continue for my husband and I as caregivers, for my son as the patient, and for my other children as the siblings. No one feels alone or lost with DCO.
I felt so passionately about the mission I volunteered to help continue it, and can proudly say that both on the outside and inside, DCO is an amazing NPO, that is making a big difference.

DCO has been absolutely essential in saving my own child's life. The board members and medical team that make up this group are instrumental in making sure information and connections are made to better the patient and families lives. I cannot say enough good about DCO. They make the world a better place. After our first camp I was so inspired I had to be a part of it too.