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Pirigui71

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1 reviews

Review for Short Bowel Syndrome Foundation, Inc., Lincoln, NE, USA

Rating: 5 stars  

Hi! My name is Pilar and I am the mother of Albert, a seven year old boy who suffers from severe short bowel syndrome. We are from Barcelona (Spain). Albert is on TPN for 19 hours a day at the moment. He is a clever,active and happy guy who goes to school and does lots of things. Key, for us has always been what he eats orally. We control sugar in all its forms and carbs. His nutrition is based on healthy fats and vitamins plus a bit of fibre. For us SBSF has been great help and support through the years. I met Andy when Albert just left hospital after spending there 9 months (he got NEC at six days of birth) and he has always been there for us to give us advise and comfort. I think this foundation is an awesome project which helps lots of people from all around the world that get connected through it. Here, in Spain we don't have a foundation like this and I am dreaming someday we can work together and build a Spanish branch of this wonderful project.
Thanks Andy!

Role:  Client Served