My Nonprofit Reviews

The FSH Society is doing a wonderful work advocating for the need for FSHD related research, the advocate for the community, and raise awareness for the need of a cure.

The FSH society is a supportive and informative non-for-profit organization, that puts its patients' needs first. They work towards research and advocacy for FSHD, and do it well. They are always their with answers and helpful information, keeping up with ground breaking research as well as with listening and understanding the community they serve.