My Nonprofit Reviews

This group works hard even during times of crisis to help the families who deal with 22q even if it is to give advice. They even have outreach info for the families who have not joined the group before and share resources.

This organization does so much for the 22q community. They provide as much help and advice as possible as well as plan get togethers for face to face support as well as online. They are more than a group thanks to them. This community is a family.

This is a group run by individuals who have a clear cut understanding about what life with 22q is about because they are living that life. This group has helped so many people with different issues as well as help the families connect with medical professionals who understand the needs of the community they are serving. The help they provide is not just for the parents and adults but also the young kids and teens who are either the siblings, cousin, or the the person with the syndrome. They even reach out to members who are in the area of an incident (whether it is one of violence or natural disaster such as Hurricane Harvey or The West Explosion). They work to not only help the families but spread the word about the syndrome so others can be educated and find other families that need the support that this group provides.

This group work hard for not only the individuals with 22q but also their families.