My Nonprofit Reviews

TeriAnne
104 profile views
1 reviews
Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA
When my daughter was diagnosed at 18 months I was devastated. I was surprised the doctors didn't have much information to give me. My daughter didn't have teeth, barely crawled, didn't talk. I was told by the genetics clinic to put my child in an institute and start my family over. I was 30 years old, I had begged God for a child. By connecting with the Cornelia de Lange Syndrome Foundation, Inc. It changed my life. I knew I was in great company. The help the knowledge, the family welcome and education was spectacular.
Role: General Member of the Public