My Nonprofit Reviews

The CdLS has been a lifeline for my family for 22 years. Several days after my daughter was born with this rare syndrome, she was on life support and not expected to live. I was desperate for information. With tears streaming down my face, I called the Foundation. The executive director was the compassionate, caring voice that I needed to hear. They sent information to me overnight, and have continued to provide this same level of loving care to my family throughout my daughter's life. This is such a rare syndrome that many medical professionals have never treated a child with it. The Foundation has helped us navigate many health issues and provided a network of friends we can call on for advice and support. I don't know where we'd be today without them!