My Nonprofit Reviews

I'm so lucky that I found this group. It's very hard to find information and support for a disease that is very rare. I get fantastic information and constant updates on any trial available as well as advice, support and valuable information about treatments that my fellow LMSdr friends are trying. I get real life information on side effects and "tricks" to avoid them. We mourn losses together and we celebrate victories . I am very lucky to be a part of this group.