My Nonprofit Reviews

luziana64 - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

luziana64

229 profile views
2 reviews

Review for Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF), Staten Island, NY, USA

Rating: 5 stars  

I have organized a unite@night walk for the past 4 years. I've attended the past two unite@thehill events. I have attended countless educational events and I am so very happy to be associated with them. CSF made a difference in my life!!!

Role:  Volunteer
 

Review for Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF), Staten Island, NY, USA

Rating: 5 stars  

CSF has made a HUGE difference in my life!! I had been diagnosed with Chiari just 2 months prior to the very first educational event in Washington DC. When I learned of the event I registered to attend. That night I met people who remain a part of my life, including the neurosurgeon who performed my decompression surgery. The group and the people who attend CSF events, are my lifelines during hard times. The research is above and beyond and I'm thankful for the advancements I've seen. Thank you CSF for ALL you do!!!!

Role:  Volunteer