My Nonprofit Reviews

When I was first diagnosed with this cancer I read everything I could find on the internet. The information was daunting and gave me a very small chance at 5 year survival. I wanted to know patients stories and finally decided to do a search on Facebook. I found LMSarcoma Direct Research (LMSDR) and it became a home. The fellow patients and caregivers are amazing with support and information. The conferences they host are full of good information given by talks from excellent oncologists. LMSDR gives grants to researchers who are working for a way to control Leiomyosarcoma without further harm to the patient. They have set up both a blood bank and tumor slide collection for researchers to use. LMSDR helped me to change my fear of imminent death to one of hope. There is much work to be done but if research stays ahead of the current therapies there is hope for people with LMS.