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Review for Lmsarcoma Direct Research Foundation, Tulsa, OK, USA

Rating: 5 stars  

LMSarcoma Direct Research Foundation (LMSdr) raises money for research for leiomyosarcoma, a very rare sarcoma on the smooth or involuntary muscles. LMSdr has all volunteer staff who work out of their own homes - so true to their name, money goes directly to research. They have put on patient conferences, advocate trainings and webinars. Even though there are only about 1276 LMS patients in the US... they have a Face Book support group of 1450 patients and loved ones. Their newsletter reaches 2000. This foundation is the life-line for LMS families.

Role:  Volunteer