My Nonprofit Reviews

Prior to my son being diagnosed I googled every term I could think of. CAPPS was the first thing to show up in a search. It was my lifeline and armed me with the information I needed to appropriately advocate for him when so many doctors didn't know what was wrong or how to help. In raising awareness, families will not have to search so fiercly like we had to in order to find help. Every OB/GYN, every pediatrician and most definitely every pediatric neurosurgeon needs to fully understand this condition and the affects. And CAPPS is on a wonderful mission to raise awareness and support families going through it. Amy Galm is amazing and puts cranio families needs ahead of her own.

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