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1 reviews

Review for Craniosynostosis & Positional Plagiocephaly Support Inc., Massapequa, NY, USA

Rating: 5 stars  

CAPPS is an amazing organization that provides much needed support and information to families facing a tough diagnosis. I don't know what I would have done if I hadn't found a support group after my daughter was diagnosed with craniosynostosis and we found out she needed surgery. CAPPS provided a place to turn to and get my questions answered as well as a place to help me feel that I wasn't alone.

I've personally experienced the results of this organization in...

the way it is raising awareness for craniosynostosis through their own website and through Facebook.

What I've enjoyed the most about my experience with this nonprofit is...

the support I have received from other families facing the same diagnosis as we did.

If this organization had 10 million bucks, it could...

raise awareness by providing information to pediatricians nationwide so that craniosynostosis would no longer be misdiagnosed as it so often is now.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?


Role:  General Member of the Public & I received support and guidance from members of this group.