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nnickoley

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1 reviews

Review for Chiari & Syringomyelia Foundation (CSF), Staten Island, NY, USA

Rating: 5 stars  

CSF has been an invaluable resource to me and it is a marvelous organization! They are at the forefront of educating, researching and bringing about awareness of Chiari, syringomyelia as well as related conditions. Having several comorbid conditions and finding them so poorly understood in the medical community, the physician lectures that are available online have helped me to understand them better and become my own best advocate. I refer others often to CSF's site to learn more - patients, caregivers and medical professionals. Funding is critical to keep CSF moving forward with the important work they do. I am honored to be involved as a unite@night walk chairperson for the past 3 years as well as becoming the local chapter representative in my area.

Role:  Volunteer