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Debbie203

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1 reviews

Review for Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF), Staten Island, NY, USA

Rating: 5 stars  

When I was first diagnosed with Chiari, I sought out sources of reliable information. Although I didn't come across CSF immediately I found them eventually. Their emphasis on education of the public and especially the medical field has always been encouraging. Their professionalism and focus on raising awareness is in large part why I have become an active part of the organization through hosting a loca awareness walk. I know that the money I raise is being placed into competent and caring hands. And I am confident that the people I send their way will find help as they journey through their own diagnosis of Chiari, Syringomyelia or a related disorder.

Role:  Volunteer