My Nonprofit Reviews
ekatbab
241 profile views
1 reviews
Review for Usher Syndrome Coalition, Maynard, MA, USA
The Usher Syndrome Coalition was the first place I turned when my son was diagnosed with Usher Syndrome. It welcomed my family with open arms and the founder, Mark Dunning, is one of a kind. We value the relationships that we have formed with fellow Usher Syndrome Coalition members and share a common bond that we can't share with just anyone. The people who work for the coalition, as well as those who volunteer their time are some of the most generous people I have ever met. One good thing about my son's diagnosis is meeting people who work every day to change the face and the future of Usher Syndrome for us all!
More Feedback
Will you volunteer or donate to this organization beyond what is required of board members?
Definitely
How much of an impact do you think this organization has?
Life-changing
Will you tell others about this organization?
Definitely
When was your last experience with this nonprofit?
2016
Role: Board Member
