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ekatbab

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1 reviews

Review for Usher Syndrome Coalition, Maynard, MA, USA

Rating: 5 stars  

The Usher Syndrome Coalition was the first place I turned when my son was diagnosed with Usher Syndrome. It welcomed my family with open arms and the founder, Mark Dunning, is one of a kind. We value the relationships that we have formed with fellow Usher Syndrome Coalition members and share a common bond that we can't share with just anyone. The people who work for the coalition, as well as those who volunteer their time are some of the most generous people I have ever met. One good thing about my son's diagnosis is meeting people who work every day to change the face and the future of Usher Syndrome for us all!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2016

Role:  Board Member