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Taleena_K

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1 reviews

Review for Pulmonary Fibrosis Foundation, Chicago, IL, USA

Rating: 5 stars  

Why I give to the Pulmonary Fibrosis Foundation. 12 years ago my mom was diagnosed with a disease we had not heard of - Idiopathic Pulmonary Fibrosis - a 100% fatal lung disease with no treatment and no cure. The PFF (www.pulmonaryfibrosis.org) is working every day to find a cure, while helping the PF community at the same time. In honor of my mom, Beverly Hart, and all those affected with PF, I give to the PFF to help with their mission because they care enough to go the extra mile for all affected by this killer disease. I don't stop at giving money. I also give of my time. I have become a PF Advocate for Patients and Families and operate multiple online support groups in Yahoo Groups and on Facebook. With my Breathe Support Network of Groups my goal is to ensure that patients, their families, and their friends do not have to walk the PF journey alone. PF is still widely unknown - even in the medical community. Mom and I walked alone for most of the 6 years she was alive after diagnosis. I vowed on the night she died that I would do everything I could to ensure others are not alone. I will continue my fight against PF and I will continue helping others until my last breath.

Role:  General Member of the Public